Showing posts with label Joshua. Show all posts
Showing posts with label Joshua. Show all posts

Friday, February 20, 2009

"Look what I can do!"



Joshua using his walker. Crawling is still his preferred mode of transportation because it is much faster, but now that he has discovered how fun it is to "crash" into things, he is using his walker a lot more!



Evan uses a mouth stick to count and sort and to press buttons on the computer. Here he is counting the teddy grahams for the valentines that he made for his preschool class.



Evan LOVES to play with cars. Occasionally he will sit and use his hands to play, but when he REALLY gets into it, he will lay down and use his mouth. Note how well he uses his mouth to maneuver things. Also note how he uses one hand to move them other when moving the cars into position with his hands. It really is fascinating to watch him!

This is Joshua.

(You want to eat him up, don't you? Don't worry, he has that effect on all of us!)

Joshua was born with multiple limb differences. Doctors have been unable to pinpoint a specific diagnosis for Joshua's condition because the characteristics of his disorder do not fit neatly into any one diagnosis. Several theories include femoral hypoplasia (without unusual facies), proximal focal femoral deficiency, caudal regression, and sacral agenesis/dysgenesis.

His laundry list includes the absence of both femurs as well as the fibula in his left leg, absent hip sockets (his legs are held in place and supported by soft tissue only) a misplaced left scapula, his left arm is 3/4 of an inch shorter than his right, sacral agenesis (partial absence of sacrum (he is completely missing his coccyx also known as the tailbone), and sacral dysgenesis (the part of the sacrum that does exist is malformed). Fortunately, many of the problems that are associated with sacral agenesis/dysgenesis (and/or caudal regression syndrome) such as neurogenic bladder are not currently present (although a urologist monitors him closely). Unfortunately, we have very little history regarding his birth mother, her medical history or her pregnancy and so determining the cause of his condition is almost impossible. Our best guess is that his mother may have had untreated diabetes during her pregnancy which can often cause these types of deformities (there is very little prenatal care in the more remote parts of Uzbekistan, so this theory is probable).


We brought Joshua home from Uzbekistan when he was 10 months old. At the time he could not sit unsupported and would roll to get where he wanted to go. He now sits completely unsupported (he does not even use his hand(s) to balance), can crawl at lightening speeds, can climb up and down stairs and can walk with assistance.

Five months ago he was fitted for a prosthesis for his left leg (which consists of a tibia, ankle and foot). The prosthesis slides on over his existing leg, held in place by a strap that wraps around his waist. This prosthesis evens out his left and right legs making it possible for him to stand, cruise and walk. With the aide of a miniature walker (or mommy), Joshua is also able to walk.

Quite frankly, the only special need Joshua really has is that he is shorter than your average two year-old. I have found that this isn't necessarily a bad thing. For example, while he may be able to throw things into the toilet (a favorite pasttimes of his), he is not tall enough to reach the handle to flush, thus saving me many a phone call to the plumber!

Truthfully, there is nothing that Joshua cannot do. He is possibly the most stubborn and determined child I have ever met and because of that, I am excited to have a front row seat to all of the amazing things he will do in life!

(If you are wondering why I don't have as many pictures of Joshua. . .it's because he never sits still!)

"Why special needs?"

"Why special needs?" This was a question we were asked a lot during the process of adopting our boys, Joshua and Evan, from Uzbekistan and Ukraine. The truth is, we did not set out to adopt a child with special needs (much like a parent does not "set out" to conceive a child with special needs). Like most adoptive parents, we were hoping to adopt a healthy child (specifically a girl) as young as possible. So it only makes sense that we would come home with two little boys (one of whom was already 3.5 years old) with special needs! (If you'd like the whole story, you can find it here.)

Honestly, the fact that these two incredible little boys are a part of our family is evidence to me that God knows each of us individually and He knows exactly what we need. Our boys needed the opportunity to grow up in a loving family and to receive the medical intervention that would make it possible for them to reach their full potentials in life. More importantly, however, is the fact that our Heavenly Father knew how much WE needed THEM.

The more time I spend with my boys (and other people just like them), the more I am convinced that WE are the ones with special needs. You see, those of us who are "able bodied" or "typical" believe that there is a "normal" way of doing things. We all walk, talk and think "normally" and when we can't do things within the "normal" realm, we often give up. We limit ourselves because we have never had to learn to think outside of the box. Individuals with special needs do not place these limitations upon themselves. Often, they are forced to think outside of the box, therefore giving them limitless potential.

This is evidenced in the way that my son Joshua flies around the house at lightening speeds, using his arms. Or the way that my son Evan turns the pages of a book, paints, colors and plays with matchbox cars with his mouth. If my boys want to do something, they WILL do it. They will do it differently than you and I might, but they WILL do it. And in the process, they have taught me that there is nothing that I cannot do. They have taught me to think outside of the box. They have taught me that, I too, have limitless potential.

These amazing little boys are two of the most precious gifts that God has ever given me. They have blessed by life so completely that there are not words to adequately express my gratitude. Joshua and Evan are living sunshine and they brighten every corner of my life and bring joy to everyone who has the privilege of knowing them. And they remind me every day that there is nothing that I cannot do!